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World hemophilia day
This year World hemophilia day is held on next 17 April, 2023, Monday.
World Hemophilia Day is observed on April 17 every year to raise awareness and understanding of hemophilia and other bleeding disorders. Hemophilia is a rare genetic disorder in which the blood does not clot properly, causing excessive bleeding and bruising.
The day was first established in 1989 by the World Federation of Hemophilia (WFH) to honor the birthday of WFH founder Frank Schnabel, who was born on April 17, 1949. The theme for World Hemophilia Day 2023 is “Adapting to Change: Sustaining Care in a New Era.”
World Hemophilia Day aims to increase public awareness of hemophilia and other bleeding disorders, improve access to treatment and care, and provide support for those affected by these conditions. It is an opportunity to recognize the contributions of healthcare professionals, researchers and advocates who work to improve the lives of people with bleeding disorders. Frank Schnabel is the founder of WHF birthday.
World hemophilia day : World federation of hemophilia
The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia and other bleeding disorders. The company was founded in 1963 and is headquartered in Montreal, Canada.
WFH works with the National Hemophilia Society, healthcare professionals and patient groups around the world to promote education, research and advocacy for people with bleeding disorders. The organization offers a variety of programs and services, including:
Treatment and care: WFH works to improve access to safe and effective treatment for people with bleeding disorders, particularly in countries where resources are limited.
Education: The organization provides educational resources and training for healthcare professionals, patients and caregivers to help improve the diagnosis, treatment and management of bleeding disorders.
Research: WFH supports research into the causes and treatment of hemorrhagic diseases and works for global collaboration and knowledge sharing.
Advocacy: The organization advocates for the rights and needs of people with bleeding disorders and works to create awareness and understanding of the condition among the general public.
Overall, WFH plays an important role in improving the lives of people with bleeding disorders around the world and promoting greater awareness and understanding of these conditions among healthcare professionals and the public.
Hemophilia prevalence worldwide
Hemophilia is a rare genetic bleeding disorder that affects mostly males. According to the World Federation of Hemophilia, the worldwide prevalence of hemophilia A is about 1 in 5,000 male births, while the prevalence of hemophilia B is about 1 in 30,000 male births.
It is estimated that about 400,000 people worldwide have hemophilia, with about 75% of them not receiving adequate treatment. Hemophilia is more common in some regions of the world than others, with the highest prevalence in Western Europe, North America, and Australia. In developing countries, the prevalence of hemophilia is often lower and access to treatment and care more limited.
It is important to note that while hemophilia primarily affects men, women can also be carriers of the disease and experience bleeding symptoms in some cases.